Céline Dion, stiff person syndrome

Image: Instagram | @celinedion

Céline Dion opens up about rare and incurable disorder

Céline Dion opens up about her health and the reason for her rescheduled European tour. The singer suffers from stiff person syndrome.

Céline Dion, stiff person syndrome

Image: Instagram | @celinedion

Canadian singer Céline Dion has rescheduled her European tour, leaving fans speculating about her health.

In a recent social media video post, the singer opens up about her recent medical diagnosis.

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CLINE DION SUFFERS FROM RARE NEUROLOGICAL DISORDER

The 54-year-old singer recently shared an emotional Instagram video post where she tells fans about the reason she had to cancel her tour. Dion suffers from stiff person syndrome (SPS), a rare neurological disorder that causes her difficulties when singing and moving.

In an emotional video posted to Dion’s Instagram page, she opens up to fans, apologising for keeping them in the dark.

“I’ve always been an open book and I wasn’t ready to say anything before, but I’m ready now,” the 54-year-old singer said. “I’ve been dealing with problems with my health for a long time, and it’s been really difficult for me to face these challenges … We now know [SPS] is what’s been causing all of the spasms that I’ve been having,” she say.

“Unfortunately the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to,” Dion continued in the video. “I have a great team of doctors working alongside me to help me get better and my precious children who are supporting me and giving me hope. I’m working hard with my support medicine therapist every day to build back my strength and my ability to perform again, but I have to admit it’s been a struggle,” Dion continues.

A TOUGH DECISION TO RESCHEDULE EUROPEAN TOUR

In light of her diagnosis, Dion rescheduled her European tour set to begin in spring 2023, to “concentrate on my health on this moment”, the singer said.

“I have hope that I’m on the road to recovery. This is my focus and I’m doing everything that I can to recuperate,” she continued.

According to Louise Fish, CEO of Genetic Alliance UK: “Diagnosis for some rare conditions takes too long: more than a third of people with a rare condition have to wait more than five years from first noticing symptoms to getting a diagnosis. This can be a challenging, sometimes lonely experience, and we know some people’s account of their conditions can be doubted by healthcare professionals,” reports The Guardian.

“Céline Dion opening up about her diagnosis is really welcome as we know that contact with others can play a vital role in helping people to live well with their condition. A personal story like this one will hopefully enable more people to reach out and offer support to one another. Charities supporting people with rare conditions can often play a vital role in making these connections,” Fish said.

STIFF PERSON SYNDROME EXPLAINED?

Reports state that SPS affects approximately one in 200,000 individuals in the UK. The disorder is caused by the body’s immune system attacking itself and there is no cure, although most cases are treatable through chemical intervention and immune therapies.

The ‘My Heart Will Go On’-singer first opened up about the disorder in October 2021 when she postponed the beginning of her Las Vegas residency. She described her condition as “severe and persistent” muscle spasms.

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