celine dion

Celine Dion has vowed to fight back against her rare illness Stiff Person Syndrome.
Images via YouTube screenshot: Prime Video

‘I won’t stop’: Celine Dion breaks silence on rare illness [video]

Celine Dion has vowed to make a music comeback, even if she has to ‘crawl’. Take a look at this trailer from her new documentary….

celine dion

Celine Dion has vowed to fight back against her rare illness Stiff Person Syndrome.
Images via YouTube screenshot: Prime Video

Celine Dion claims she is now ready to talk about her deteriorating health after being diagnosed with a rare illness. 

The Canadian superstar is battling the incurable neurological disorder called Stiff Person Syndrome (SPS).

The 56-year-old opened up about her struggle in a trailer for her new Amazon Prime documentary, I am Celine Dion, which airs on 25 June.


In the teaser, an emotional Celine Dion gives her fans a real, raw, and painful look at her health struggle.

She said in a clip: “I’ve been diagnosed with a very rare neurological disorder, and I wasn’t ready to say anything before. But I’m ready now.”

Fighting tears, the six-time winning Grammy awardee admitted that she missed performing live, which she ceased in late 2022.

She continued: “It’s not hard to do a show, it’s hard to cancel a show.

“I’m working hard every day, but I have to admit, it’s been a struggle. I miss it so much, the people, I miss them.”

She touchingly added: “If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. But I won’t stop.”


Recently, Celine Dion’s loved ones have spoken out about not being able to find any medication to alleviate the symptoms or help with pain management.

However, that hasn’t stopped the singer from fighting back.

She told Vogue France in April: “I haven’t beat the disease, as it’s still within me and always will be.

“Five days a week, I undergo athletic, physical, and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice.”

During the interview, Celine Dion claimed that she first experienced symptoms of Stiff Person Syndrome as early as 2008. 

One of the biggest signs was her voice beginning to spasm during singing. Another was muscle stiffness, which she experienced during her Las Vegas residency, which ended in 2019.

She added: “I started having a hard time walking. I was holding on to things”.

Celine Dion 'no longer has control of her muscles' due to rare illness
Celine Dion ‘no longer has control of her muscles’ due to rare illness Photos: Instagram/CelineDion


According to the National Institute of Neurological Disorders, SPS is a rare, progressive neurological disease. It is also incurable.

As the name suggests, the condition causes the stiffening of the torso, arms, and legs. It is twice as likely to affect women than men. It is also linked to auto-immune conditions like type I diabetes, thyroiditis, vitiligo, and anemia.

While there is no cure for the disease, medication like muscle relaxants and others can help alleviate the symptoms.